Plaquenil Can Leave You Blind-Tests to have Run/Vitamins to Take


A13
3mo ago by MyPatientMatch User

Plaquenil can make you completely blind!
*Legitimate looking vitamins I take to help remediate it

I took Plaquenil for over 13 years and it caused me (and 6 in every 1000 patients, new research shows) to have toxic maculopathy it caused. *re: even if you quit taking the drug, it can continue to damage the eye until blindness occurs.
If you are taking it, make sure your physician is using the NEW guidelines on treatment ==I think it is no more than 5 milligrams per kilogram (For example just heard an example on this video if under 140 pounds you shouldnt be on 400 miligrams )


Friends: If you have ANY changes in your vision, friends, head to a retinal specialist--1 test I had an angiogram done.

My first retina specialist said i could be blind in 20 years without telling me the odds of that happening or giving me hope
My 2nd retina specialist doctor thinks that, since I have had very little deterioration since stopping the drug 18 months ago, I may be one of the fortunate ones that only have some damage.

All I thought Plaquenil could do to my eyes was to cause them to lose color vision. I never truly understand what the Humphrey Visual Field Test was (and it is very rudimentary, my current retina specialist doctor said. If you have ANY changes on this test, be accessed by to a retinal specialist

It did work well to make my Lupus/Scleroderma is more symptomatic

Are there any support groups or experimental therapies for toxic maculopathy?

*I am looking for experimental treatments or for information sharing on this!

+++++++++++++++

I found EyePromise Restore Vitamins that I take for retina health== those particular vitamins seems highly rated on all websites and that my retina specialist recommends they are backed by 2 studies cited on their website called the Ares studies
*Website for vitamins: www.eyepromise.com

I take these eye vitamins I take to remediate future damage beyond what Plaquenil has done to my retina/macula (I have toxic maculopathy)

I researched them thoroughly and they seem very legitimate.

I am not paid and do not have any interest in selling EyePromise fyi!

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